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7 Stages of Lewy Body Dementia

A Guide To 7 Stages of Lewy Body Dementia

In the world of neurodegenerative disorders, Lewy Body Dementia stands as one of the most challenging conditions to deal with. If you have a loved one who has been suffering from this painful condition, you’ve probably wondered about lewy body dementia stages.

Any medical condition is a bit easier to deal with, if you have the required knowledge. So let’s explore the 7 stages of lewy body dementia, understanding what it is, its causes, symptoms, lewy body dementia progression, and treatment options – offering insights to guide both patients and the caregivers.

What is Lewy Body Dementia?

Lewy Body Dementia (LBD) is a progressive brain disorder that affects the thought process, behavior, and movement of the affected person. It is characterized by the presence of abnormal protein deposits called Lewy bodies in the brain. Unlike other dementias, lewy body dementia progression often presents a unique blend of cognitive and motor symptoms.

Causes of Lewy Body Dementia

Understanding the causes of lewy body dementia is essential for early detection and management. While the exact origins of LBD remain elusive, researchers have identified several factors that contribute to its development.

  • Formation of Lewy Bodies: The main cause of Lewy Body Dementia is the accumulation of abnormal protein deposits in the brain, called Lewy bodies. These deposits disturb normal brain functions.
  • Genetic Factors: Genetic predisposition plays a role in some cases of LBD. Individuals with a family history of dementia-related disorders may be at a higher risk of developing Lewy Body Dementia.
  • Neurotransmitter Imbalance: Disruptions in neurotransmitters, the chemical messengers in the brain, contribute to lewy body dementia progression – Specifically acetylcholine and dopamine, being the key neurotransmitters.
  • Brain Cell Degeneration: Progressive degeneration of nerve cells in areas of the brain responsible for cognitive function and motor control, is a fundamental aspect of this condition.
  • Environmental Factors: Certain environmental factors including exposure to toxins or environmental stressors could also contribute to the lewy body dementia progression.
  • Interaction with Other Disorders: Individuals with existing neurodegenerative disorders or medical conditions, such as Parkinson’s disease or Alzheimer’s disease, may be at an increased risk of developing Lewy Body Dementia

7 Stages of Lewy Body Dementia

Lewy Body Dementia progression is characterized by distinct lewy body stages, each presenting unique challenges for individuals and their caregivers. Understanding these lewy body dementia stages is important to provide appropriate care.

Here are the 7 stages of Lewy Body Dementia:

Stage 1: Early Symptoms Of Lewy Body Dementia

In the initial stage, individuals may exhibit subtle changes in behavior, mood swings, and minor cognitive fluctuations. These early signs often go unnoticed or are attributed to normal aging, making early detection challenging.

Stage 2: Mild Cognitive Dementia

As Lewy Body Dementia progression occurs, cognitive decline becomes more apparent. Memory lapses, difficulties with concentration, and mild confusion emerge. Individuals may start experiencing challenges in daily activities, and loved ones may notice subtle but persistent changes in their cognitive abilities.

Stage 3: Mild Dementia

The third stage sees a more noticeable impact on daily functioning. Communication becomes strained, and individuals may struggle to express thoughts coherently. Memory deficits worsen, and daily tasks become increasingly challenging, necessitating greater support and understanding from caregivers.

Stage 4: Moderate Dementia

Moderate dementia brings a significant decline in cognitive abilities. Memory loss becomes more pronounced, and individuals may struggle to recognize familiar faces. Motor symptoms, such as tremors and stiffness, may also become noticeable, further complicating daily activities.

Stage 5: Moderate Severe Dementia

This stage marks a substantial deterioration in both cognitive and motor functions. Hallucinations and delusions may occur, leading to increased confusion and agitation. Caregivers play a crucial role in managing these challenging behaviors and ensuring the safety and well-being of the individual.

Stage 6: Severe Dementia

Communication becomes severely impaired in the sixth stage, with individuals often unable to express themselves verbally. Dependence on caregivers for all aspects of daily living becomes necessary, and mobility may be severely compromised. Emotional and behavioral challenges intensify, necessitating specialized care.

Stage 7: End Stage Dementia

In Lewy Body Dementia end stage, individuals may lose the ability to move and speak. Complete dependence on caregivers is required for all aspects of care, including feeding and hygiene. Lewy Body Dementia final days are emotionally challenging for both the individual and their loved ones, highlighting the importance of compassionate end-of-life care.

Lewy Body Dementia Symptoms

Lewy Body Dementia manifests as a complex interplay of cognitive, motor, and psychiatric symptoms, and identifying these symptoms is necessary for early detection.

Listed below are Lewy Body Dementia symptoms:

Cognitive Symptoms:

  • Memory Loss: Individuals with LBD may experience memory lapses, forgetfulness, and difficulties with recall, reminiscent of other forms of dementia.
  • Fluctuating Cognitive Abilities: One of the main symptom is the unpredictable nature of cognitive decline, with abilities fluctuating throughout the day.

Motor Symptoms:

  • Parkinsonian Features: LBD often presents with motor issues similar to Parkinson’s disease, including tremors, stiffness, and a shuffling walk.
  • Balance and Coordination Issues: Individuals may struggle with maintaining balance, leading to an increased risk of falls.

Visual Hallucinations:

  • Seeing Things That Aren’t Present: Visual hallucinations are common in LBD and can be distressing for both individuals and their caregivers.

 Psychiatric Symptoms:

  • Depression and Anxiety: Mood disorders are prevalent in LBD, contributing to emotional distress for the individual.
  • Apathy: Individuals may exhibit a lack of interest or motivation, impacting their engagement in daily activities.

Sleep Disturbances:

  • REM Sleep Behavior Disorder: LBD often disrupts the normal sleep cycle, leading to vivid dreams and physical movements during REM sleep.

Sensitivity to Medications:

  • Neuroleptic Sensitivity: Individuals with LBD may have adverse reactions to certain medications, leading to increased confusion and motor symptoms.

Autonomic Dysfunction:

  • Blood Pressure Fluctuations: LBD can impact the autonomic nervous system, leading to unpredictable changes in blood pressure.
  • Digestive Issues: Constipation and other gastrointestinal problems may arise due to autonomic dysfunction.

Cognitive Fluctuations:

  • Attention and Alertness Fluctuations: Individuals may experience variations in attention and alertness, contributing to the challenging nature of diagnosis and care.

What Is The Average Lifespan After Diagnosis?

The course of this medical condition varies, but on average, individuals diagnosed with Lewy Body Dementia may live from 5 to 8 years, with factors such as age and overall health influencing this timeline.

Is Lewy Body Dementia a Fatal Disease?

Lewy Body Dementia is indeed a progressive and life-limiting disease. While it may not directly cause death, complications such as infections or falls can significantly impact life expectancy.

How to Treat Lewy Body Dementia?

There is currently no cure for LBD, various treatment options and strategies can help manage symptoms and improve the overall well-being.

Addressing Lewy Body Dementia and managing its symptoms requires a multifaceted approach that considers both cognitive and motor symptoms, aiming to enhance the quality of life. 

Here are the comprehensive ways to treat Lewy Body Dementia:


  • Cholinesterase Inhibitors: These medications, such as donepezil, rivastigmine, and galantamine, are commonly prescribed to manage cognitive symptoms by increasing levels of acetylcholine in the brain.
  • Dopamine Modulators: Medications like levodopa may be prescribed to address motor symptoms associated with Parkinsonian features.

Psychiatric Medications:

  • Antipsychotic Medications: In some cases, antipsychotic medications may be prescribed to manage hallucinations, delusions, and behavioral disturbances. However, caution is required due to potential side effects.

Physical and Occupational Therapy:

  • Motor Skill Enhancement: Physical therapy can help individuals maintain mobility and reduce the impact of Parkinsonian symptoms, while occupational therapy focuses on enhancing daily living skills.

Supportive Care:

  • Creating a Supportive Environment: Adapting the living environment to the individual’s needs can minimize confusion and enhance safety. This may include simplifying daily routines and ensuring a clutter-free space.
  • Caregiver Support: Providing education and support for caregivers is crucial. This may involve counseling, respite care, and connecting caregivers with support groups.

Sleep Management:

  • Establishing a Sleep Routine: Consistent sleep patterns and a comfortable sleep environment can help manage sleep disturbances associated with Lewy Body Dementia.

Nutritional Support:

  • Balanced Diet: A nutritious diet, including antioxidants and omega-3 fatty acids, can support overall health. However, considerations for swallowing difficulties may be necessary.

Communication Strategies:

  • Adapting Communication Styles: As speech and language abilities decline, employing clear and concise communication, along with visual aids, can enhance understanding.

End-of-Life Care Planning:

  • Advanced Care Directives: Planning for end-of-life care, including discussions about preferences for medical interventions, can help ensure that the individual’s wishes are respected.


Remember that knowledge is a powerful tool – At Manhattan Medical Arts, we are committed to supporting those affected by neurological conditions through treatment, care, as well as by offering all the required information. 

If you or a loved one are facing the challenges of Lewy Body Dementia, our experienced team is here to provide compassionate care and guidance on this complicated and challenging path.

Frequently Asked Questions

What are the 7 stages of dementia?

The 7 stages of dementia typically refer to the progression of cognitive decline and functional impairment in various types of dementia. These stages range from early symptoms to end-stage dementia.

Do Lewy body patients become aggressive?

Yes, individuals with Lewy Body Dementia (LBD) may experience behavioral changes, including aggression. These behaviors can vary among patients.

How long do the 7 stages of dementia last?

The duration of each stage can vary widely, and the overall progression depends on the type of dementia and individual factors. It may span several years, with some stages lasting longer than others.

Can Lewy body dementia get worse suddenly?

Yes, Lewy Body Dementia can exhibit sudden and fluctuating changes in symptoms. These fluctuations may include sudden worsening of cognitive abilities, motor function, or behavioral aspects.

What are the signs of end-stage Lewy Body Dementia?

End-stage Lewy Body Dementia is characterized by severe cognitive and physical decline. Signs may include the loss of ability to communicate, complete dependence on caregivers for daily tasks, and a significant decline in overall health.

– Disclaimer –

This blog is for informational & educational purposes only, and does not intend to substitute any professional medical advice or consultation. For any health related concerns, please consult with your physician, or call 911.

Medically Reviewed

Last reviewed by Dr. Syra Hanif, M.D. on 12/22/2023

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  • About The Author

    Dr. Syra Hanif M.D.

    Board Certified Primary Care Physician

Dr. Syra Hanif is a board-certified Primary Care Physician (PCP) dedicated to providing compassionate, patient-centered healthcare.

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